Cancer Patients’ Voice platform launched to take conversation about cancer research, treatment and care online
Working in partnership with patients and the public helps ensure both our services and research function best for the communities we serve.
12 January 2021
The current pandemic raises challenges for in person working with patients, carers and the public in both research and acute services, but it has also highlighted the potential of technology.
The NIHR Biomedical Research Centre at The Royal Marsden and the ICR (BRC) has recently launched a brand-new Cancer Patients’ Voice digital platform, a quick, secure and easy way for patients, carers and the public to have their say about improving cancer treatment and care online.
Developed with input from patient representatives in the BRC’s Digital theme Working Group, the platform provides the chance for more people to share their views and ideas, contribute to research projects, join moderated discussions and more, at their convenience. For professionals, researchers and clinicians at The Royal Marsden NHS Foundation Trust and the Institute of Cancer Research, it also offers a potential avenue to engage and involve underrepresented groups.
As with all our involvement activities, the platform allows the public, patients and carers to choose their level of involvement in all aspects and stages of our research and services design and development.
Dr Markella Boudioni, Patient and Public Involvement and Engagement Lead at The Royal Marsden, believes that: ‘The digital platform is a great development for patient and public involvement and engagement at the Royal Marsden. It has the potential to involve diverse and less-engaged people, empower patients and members of the public and ensure better and rapid collaboration with professionals.’
Commenting on her involvement in the development of the platform, Della Ogunleye, the BRC Digital Theme Patient Representative, said: ‘It was an honour and privilege to be part of the implementation team. As a patient who has had two diagnosis of both breast cancer and ovarian cancer in the past 10 years, I solely welcome this digital platform. This will be a welcome tool to both patients and researchers to further help develop better treatments. It will also allow us to put our questions about research to researchers and better get involved in beating cancer together.’
The initiative has also been welcomed by Professor Susanne Cruickshank, The Royal Marsden Strategic Lead for Applied Health Research: ‘This is a fantastic initiative and I look forward to using the platform to engage with patients and the public. Working in partnership is key to achieving excellent care and world class research.’
If you are a patient, carer, or member of the public that is interested in this exciting new way to collaborate, please visit the platform homepage. Registration to use the platform is straightforward and can be completed here. Alternatively, email firstname.lastname@example.org to find out more.
If you are a member of staff at The Royal Marsden or the ICR that is interested in using the platform, contact Steven Towndrow, Digital Patient Engagement Coordinator at the BRC: email@example.com.
You can also join a free virtual launch event from 5.00pm – 6.30pm on Wednesday 10 February 2021 to see the platform in action, how using it could benefit you and to ask any questions you may have. The event is open to all – patients, the public, staff at The Royal Marsden – and will be taking place on Zoom.
To book your place please get in touch:
Phone: Lisa Leavey, PPI Administrator - 020 3186 5408